For this child I prayed.

For this child I prayed.

Thursday, 5 January 2017

New Year, new generosity.

Happy New Year. First post of 2017. I'm actually excited for this year. I feel like a lot of good things are going to happen. With 2016 ending fairly positively in our lives, it has given me hope for a season of rest and allowing some hard work to be paid off. Layla has been doing so well lately. Sleep has been fairly consistent with a 6-7 hour chunk at night.. whoot whooot! That alone makes a world of a difference.
Layla has stayed so healthy through this winter, knock on wood it will continue that way. She barely has had colds and NO hospital stays. Last winter, I swear she was sick the whole time.
Next week we're getting trained on a suction machine to have around the house when Layla is choking on her secretions or vomit. This will help take away the stress for her and us when she is struggling to get these liquids out of her mouth and throat. These episodes have been a bit more scary the last couple months.
We have the van in our hands which has been a total life changer. We are so thankful for everyone that has given toward this van. Never will I forget the generosity of others because I will look at the van and know we couldn't have done that on our own. The plan is to pay the van completely off in the next couple months. The Salt Spring Island Driftwood newspaper just printed a story about the need for our van. Plus, the second burger and brew at the end of this month should bring us pretty close.
In other news we were chosen by a family, through Canuck Place, who recently lost their 9 year old son to be given a pretty fancy hospital bed (we're talking $10,000 fancy). Obviously it's horrific what they have been going through in the last couple months... and it hits a little too close to home.. but they are so generous in deciding they would give away his equipment to other families. They said they understand the need and cost involved in raising a special needs child and couldn't imagine trying to make money off of those things. The bed is coming from Kamloops and at first we were quoted $800 to have it delivered by a moving company. Which was really disheartening.. but then she posted on a community site and a company that was coming down for a conference in Vancouver said they would attach their trailer, pick up the bed and deliver it FREE of charge. Wow. Again, communities are amazing. They are dropping off the bed today! Fingers crossed they can get it up all the stairs (we really didn't think that through when we moved in almost a year ago, I mean Layla was so small and light still then). The bed is 250lbs. Another heavy thing to add to our home. But this should only help with sleep. Having the electric incline for the head and foot will help Layla be the best supported through the night and help keep reflux at bay. The mother told me it made the world of a difference for her sons sleep.
Layla is getting a new manual wheelchair in the next couple of weeks.. which will make transportation even easier. Then in a couple of months we will be having the trip to UCLA... I feel like the list keeps going.
I'm feeling some peace and joy in my heart that I haven't had for a while. And oh man, I hope it sticks around. What else will 2017 bring?


2 comments:

  1. This is so awesome to read! You guys are blessed! So exciting to see the hearts in people :)

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  2. Makes my heart so happy to hear and read the smile in your heart!! The generosity of people are so amazing! and Layla looks so grown up and content in her big girl bed! Big hugs!!!

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